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Rare Disease Day

查词链接:https://www.dute.org/dict/Rare_Disease_Day复制链接
罕见病日:罕见病日是由欧洲罕见病组织(eurordis)在2008年2月29日发起的活动,旨在通过各种形式来促进人们对罕见病的认识、关注和理解。
查看英英释义
abstract:
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. It was established in 2008 because, according to the European Organization for Rare Diseases (EURORDIS), treatment for many rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families; furthermore, while there were already numerous days dedicated to sufferers of individual diseases (such as AIDS, cancer, etc.

网络释义
国际罕见病日
这个四年一次的日子是国际罕见病日(Rare Disease Day),意寓发病率万分之一甚至百万分之一的罕见病的极其罕见。国际确认的罕见病有五六千种,如成骨不全症、血友病、白化病等。
罕见病日
节日:2月29日是世界罕见病日(Rare Disease Day)。一万株三叶草才有一株四叶草,它象征幸运,也是罕见病的象征物。
国际少有病日
国际少有病日(Rare Disease Day)由 欧洲 少有病组织(EURORDIS)于2008年..
国际有数病日
2月29日,国际有数病日(Rare Disease Day),这个四年一次的日子意寓有数病之“有数”。壹基金陆地天国蓄意继续戮力于关注非常残障类儿童,为了应接本年的“世界有数病日”...
* 以上查询结果来自于网络,仅供参考。
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